Wednesday, December 22, 2010

On Waiting and Hope

Advent.  The time of the year in which, regardless of whether your season is filled with Santas and chocolate or nativities and prayer, we wait.  For some, the anticipation building is for family, food, gifts, and fun.  For others, who are isolated, hurt, grieving or lonely, the waiting may be a more somber, painful waiting for Christmas to simply be over.  For Christians, we wait for the birth of Christ, a reminder that Jesus is indeed our gift from God, sent as the ultimate reminder of love and hope.

In 2007, my Advent was filled with waiting.  And hope.  I had begun treatment for my severe postpartum mood disorder just before Thanksgiving, and on Thanksgiving day had added some new components to and finalized my treatment plan.  That day my despair and hopelessness turned to anticipation of wellness as I caught a small glimpse of the promise of relief from my emotional pain.  Each day, I waited, and prayed, and tried, and hoped to get better.

Children put ornaments on an Advent calendar as a way to actively countdown to a most special day that is certainly coming for them.  The days of Advent feel like they are made of 100 hours, instead of 24, to a youngster.  Christmas can't arrive soon enough to a child.  And, that's how it is when you have a PMAD.  The day of hope and gladness can't arrive quickly enough.  The waiting can't cease soon enough.

This photo was taken just 5 weeks after I began treatment for PPD.  During the worst moments of Postpartum Depression and Anxiety, I had often been unable to be in the same room with my baby.  This moment, when the Advent waiting was over and Christmas had finally come, began my journey to recovery, advocacy and support for other women.  


I pray that your waiting is short and that you are able to find solace and peace in the hope of knowing that you, too, will get better.


Merry Christmas!

Friday, December 17, 2010

Loss and Grief in Pregnancy and the Postpartum Period

According to the American Psychological Association and many other valid resources, death of a loved one while pregnant or postpartum is a risk factor for postpartum depression.  Grieving the death of someone near and dear to you, especially if this person would have been a support to you during your pregnancy or with your child, seems obvious.  But, for me, this realization only came much later...in hindsight.

Our pregnancy with L was a surprise.  We had been married for two and half years when we conceived and had never used birth control.  We had had some fertility testing (though hadn't opted for any interventions) and had basically been told that like 10% of other "infertile" couples we had what doctors call "unexplained infertility".  There's more to that story, but that's not what this post is about.

Anyway, it was such a shock that we had become pregnant at all.  And because I didn't learn I was indeed expecting until six+ weeks into the pregnancy, it took a little while to adjust.  By the time we'd shaken off the surprise and begun some planning I was nearly into my second trimester.

Right around that same time, I traveled to Virginia for a weekend with my college girlfriends in anticipation and celebration of our friends' wedding in just a couple of months.  On Sunday morning, just before most of us were awake, I got an unusual call.  My husband rang to tell me that he'd heard from my parents early that day and that my aunt, with whom we shared all major holidays and who had been the Matriarch of the family since my grandmother had passed away, had died suddenly at 62.  This news took us all completely by surprise and shook the family to the core.

Then, just a month and a half later, while shopping for supplies for a church retreat in the mountains I had planned for that weekend, I got a call.  My grandmother, the one with who I had lived during my Senior year of High School, had become suddenly ill and the outcome was unknown, but looking grim at that point.  I had just talked with her recently and she seemed perfectly fine!  Being in another state and having work obligations I felt extremely out of control and unsure of how to proceed.  Throughout the weekend and into the next week her condition worsened and the meningitis and strokes that she was experiencing as a result of it would certainly prevent her from ever truly being present and herself again.  At best, she'd likely be physically alive, but mentally would never regain any real consciousness.  Over the course of the next week or so the entire family decided to grant her well-known wish and allow her to pass and not to "live" solely by the aid of dozens of machines.

I flew into Pittsburgh the day that we would take her off of life support and held her hand, talked to her and stroked her face during the 2-3 hours from the time she was unhooked from the ventilator to the time she gasped her last breath.  I had an almost surreal presence about me during those days and barely even cried or mourned, even as we buried the woman that was in so many ways my rock.

Looking back, I don't think I ever grieved properly for my grandmother and even now I live in denial of her death and the circumstances around it.  They say there are stages of grief and I am certainly stuck at the anger stage...so much so that I have to push thoughts of her and her passing out of my head or else I become enraged or overcome with tears.

The summer following those Spring deaths of two of the most important ladies in our family was filled with the busyness of the third trimester when expecting your first child.  Baby Showers, Nursery decor, childbirth classes and "to-dos" allowed me to focus on everything but my grief.

Then, early in September, the phone rang.  It wasn't even 6AM on a Sunday morning and we knew the call was unusual.  Hoping it was just a wrong number, my husband stumbled half-asleep to his cell.  Just moments later his sleepiness was replaced with sadness and shock and he began wailing.  "No, no, no, not her", he cried.  His best friend had just called to tell him that his little sister had died of meningitis.  What were the chances???  Two people we loved dearly would die of a disease that kills just 250 people per year in the United States.  The odds were astronomical and winning the lottery would have been more likely.  This young woman, a college student, just 19 years old, had contracted what the doctors called a virus and sent her home to rest.  Within four hours, her brain literally burst from the pressure of the disease and she had died.  In front of her brother.  A tragic and utterly senseless loss of a brilliant and beautiful person, and someone who had been like a little sister to my husband.  And I, in fact, had grown closer to her myself when we shared a hotel room at her brother's wedding at which my husband was the best man just months before.  We both cried and prayed at church and even as we tried to go about our day and week, covered with the pall of her death and our inability to travel to her funeral because of my impending due date.

Three years later, I am still in awe of the losses we suffered in a period of 5 months in 2007.  I am saddened and angered that so much of my pregnancy was filled with loss and that my memories of it (even before I knew a thing about PPD or how it would rock me to the core) are woven with grief.

Knowing risk factors for perinatal mood disorders and being aware of signs to look for in pregnancy and postpartum so that extra support and early interventions can be planned for are imperative.  Let's talk about one of the hardest things to face so that we can help others...

Did you experience a loss during pregnancy or the postpartum period?  How did it impact your mental health?  Did you know that death of a loved one was a risk factor for PPD?  How could you have planned differently for the postpartum period if you had known that you were at greater risk?

Tuesday, December 14, 2010

Cafemom responds to our requests to clarify facts and myths about PPD

Special thanks to Cafemom writer Julie Ryan Evans who responded to our comments and emails asking her to clarify the facts or to amend an article she wrote a few weeks ago about "crimes being committed by mothers who suffered from PPD".  As many of us in the community pointed out in our comments below the article, generally women with PPD do not harm their children, in fact, even in cases of Postpartum Psychosis, while there is great risk of potential harm, and therefore the condition should be treated as an emergency, rarely do women harm their children.

In this article, published today and entitled "Postpartum Depression Myths Debunked", Evans quotes several of us who were interviewed for the piece and writes accurately about postpartum depression, clarifying that it is neither the very normal and common baby blues, nor the most extreme form of perinatal mood disorder, postpartum psychosis.

I applaud Cafemom for their timely response and interest in contacting several knowledgeable resources for this article and for their care of women with perinatal mood and anxiety disorders.  As you'll recall, Cafemom offers several online community "groups" specific to PPD and related disorders, and one of them, "The Postpartum Support Group" is one in which I offer a confidential, private weekly chat each Wednesday at 1pm EST.  This group, and the chat, are a part of the work I am doing via my partnership with Mental Health America of Georgia's Project Healthy Moms initiative.  I hope you'll join me as you are able...doing so is very easy:

  • Just join (or login if you've already got an account) Cafemom.
  • Go to the Postpartum Support Group and click "join group".
  • Look under the left sidebar (it's green) and click "chat".
  • In a blue highlighted bar just under the group name you'll see a "Start Chat" or "Join Chat" button.
  • Click that button and a new window will open up.  If you have downloaded JAVA already and your computer allows it, the group chat will open.  You will be able to see who else is participating (by screen-name only) and will be able to post your messages by typing into the yellow box and clicking "send".
  • Questions?  Email me and I will be happy to walk you through it!

Monday, December 13, 2010

Pregnant after PPD: How I am working hard to stay healthy

Most of you know from my most recent posts that I am expecting.  This pregnancy was not unexpected in any way, but when conception happens I think that there is still some normal shock and tentativeness accompanying that positive pregnancy test for every Survivor Mama.

Everything about this pregnancy, from the timing to the support system in place has be intentional.  It's funny, because I thought I had intentionally and thoughtfully planned my last pregnancy and birth and yet nothing (well, almost nothing) went as expected.  This time, I am actually focusing on the important things for my health (and letting the little things and specific expectations go).  The post "Then and Now" that was selected for Postpartum Progress' Top Ten PPD Blog Posts of 2010 gave me the idea for a new Then and Now post...this one.  The "then" will refer to my pregnancy with L during 2007.  The "Now" refers to my pregnancy now, with baby #2, affectionately referred to as "Champ".

Then...
I spent my time decorating the Nursery and worrying about paint colors.
Now...
I spend my time praying for a healthy pregnancy and postpartum period- physically and mentally.

Then...
I studied "What to Expect" types of books and read and re-read each weekly update to the point of memorization.
Now...
If I have time, I glance over the weekly "summary" email Babycenter sends.

Then...
I tracked each pound, inch, symptom and milestone during my pregnancy in a 200+ page journal.
Now...
I haven't gotten past writing in a few September dates in this pregnancy journal...and I don't really feel badly that I'm not spending my time that way.

Then...
I spent hours each day preparing for a method of childbirth that helped me cope with labor, but in the end also contributed to my devastation around having a Cesarean birth because it gave me the impression that would "never" happen to me.
Now...
I have sucked it up and accepted that not everything about my previous birth experience has to be different in order for me to be healthy this time.  As much as I wish that a VBAC was the right decision for me I have come to the conclusion that it's not...and that's okay.

Then...
I never thought about what help I might need postpartum or how challenging it might be.
Now...
I spend a lot of time pondering the weeks and months after I have this baby next Summer.  I plan to have a lot of help, both family and friends and in the form of professionals like a postpartum doula or night nurse.  I realize that this investment of time and money will benefit my whole family if I am able to get more rest as a result.

Then...
I held onto the name of a physician I'd call "in the very unlikely case that I would need to".
Now...
I have an established relationship with both a physician and therapist who I see regularly.  While both are impressed at how well I have weathered the storm so far, they also realize that being prepared and having a plan that we can put in place at a moment's notice, if needed, will be key to my health and recovery.

Then...
I thought of motherhood as an add-on and said things like, "this baby will just have to fit into our current lifestyle", actually believing that was somehow possible and wouldn't require much effort.
Now...
I realize that motherhoods blessings are equally matched by its challenges.  I am ever grateful for this experience, but also incredibly aware of the sacrifices and commitment that go along with it.  I know that the next year of my life will be overwhelming and demanding and enter the time period with my eyes wide open.

Sometimes hindsight is 20/20...or at least slightly better than legally blind.

Peace,

Tuesday, December 7, 2010

Postpartum Progress' 2010 Top Ten PPD Writers

Check out my fancy schmancy new badge y'all!  I am humbled and honored to be included in the Postpartum Progress 2010 Top Ten PPD Writers list.  What an amazing Christmas gift!  Thank you, Katherine, for recognizing my writing by including my piece, "Then and Now".  And, now go check out all the posts, folks...this is the cream of the crop when it comes to real, honest and inspiring, hope-inciting writing about perinatal mood and anxiety disorders.

Monday, December 6, 2010

If I can't have Peace on Earth how about just peace within, Santa?

I am sorry it's been so long.  Really, I am.  I promise that I haven't stopped working.  Or reading.  Or brainstorming.  Or trying to help Mamas.  But, I haven't written, so for all intents and purposes I might as well have been on vacation.  Except, what I (or rather my body) have been up to is far removed from a holiday.


Early on in my pregnancy, like at 6 or 7 weeks just as the incapacitating morning all-day sickness hit, I noticed that there was something going on with my body that shouldn't be.  Said area was swollen, inflamed and painful.  Of course, I happened to notice at like 4:03pm on a Friday, just in time for all doctors offices to close for the weekend.

That's how I began a blog post I started on Friday and never found the time or energy to finish.  The short version of the infection story is that I have had an E-coli infection in the form of an abscess in a particularly painful and unexpected area of my body for nearly my entire pregnancy.  I am currently on antibiotic #3, have had an outpatient "surgery" performed on the abscess and also received two very painful shots in my hips on Friday in order to try to give this thing the permanent boot.  My fingers are crossed!

During all of this, we've been dealing with various issues including decision-making around our home, behavior issues with L and of course, what is supposed to be the most wonderful time of the year!  I am praying that things will calm down over the next couple of weeks enough for me to take a breath, enjoy the decked halls, and contemplate Advent and the reason for the season.

So, dear readers, I hope to be better about writing over the upcoming weeks.  And in the meantime, please follow my Tumblr account where I share links several times each week to all the good reads (both articles and blog posts) about perinatal mood and anxiety disorders that I come across.

Peace,